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Channel: Sickle Cell Disease – Cleverly Changing
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Health Moment: Sickle Cell Update – 4 Years Old and Summer is Here

I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many...

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Parents, Let Go of the Guilt and be Thankful

Prayerfully, I will take a few moments to share my story with you, and I pray for you as a parent and a spouse. If you are parenting a child with a genetic disorder or another type of illness let go of...

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Sickle Cell and Accomplishing Big Dreams #30forSickleCell

One lesson I want my daughter to learn in life is that even though she has Sickle Cell Anemia, education is not optional. She is fully capable of learning and living with Sickle Cell. Everyday, I...

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5 Myths About Sickle Cell Disease Debunked #30forSickleCell

There are many myths associated with sickle cell disease, but today we will debunk a few and provide people with a better understanding of what sickle cell is and how it affects different types of...

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The Right Attitude #30forSickleCell

Every year we are blessed to spend here on earth we should be thankful for the opportunities and experiences we have. As a parent of a child with Sickle Cell Disease it can be very easy to look at the...

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Fighting Sickle Cell on House Call With Dr. Mac (Part 2) #30forSickleCell

I’m always reminded that God’s got this! He still has the world in His hands. We cannot take time off of life to just STOP. No, we must keep going and continue to fight for our families. We also must...

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2015 Sickle Cell Forum Recap #SCDFORUM15

Wow! There is so much I could write about, but in the interest of time, I have decided to share with you my top 5 most memorable moments while attending the 2015 Sickle Cell Forum at the National...

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5 Facts About Sickle Cell You Should Know – World Sickle Cell Day

As you know World Sickle Cell Day is very close to my heart. Everyday that I look at my daughter and she lives pain-free is a blessing. So far with a healthy diet and drinking plenty of fluids her life...

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Sickle Cell Disease

One of our daughters was diagnosed with Sickle Cell Disease when she was a couple of weeks old. Specifically, the doctor told us she had (SS) Sickle Cell Anemia.  So, what is Sickle Cell Anemia?  It is...

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Tune in @2 EST. Today for a Live Symposium on Sickle Cell Disease

“Pain in Sickle Cell Disease…Battling Stigma and Gaps in Knowledge” will be live online at http://www.sicklecell.howard.edu/ this symposium airs Today, May 10, 2011 at 2 p.m. EST. Fourth Roland B....

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My Little Hero and Her First TCD Test

Image: redjar I sat at my computer while tears rolled down the apples of my check. Is it OK for me to cry? Does it mean that I trust God less? Sometimes I feel sad that my child has Sickle Cell Disease...

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Parenting a Child with Sickle Cell Disease

“In the United States more than 80,000 people have Sickle Cell Disease” (Hope & Destiny, p.1). In fact, it is one of the most prevalent genetic disorders in this country, but also one of the least...

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Sickle Cell and Pool Safety

Source: Worakit Sirijinda, freedigitalphotos.org This year my family will take a trip to Great Wolf lodge, a family friendly resort and water park. I am excited about the trip and the break, but also...

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National Sickle Cell Advocacy Day 2013 – June 25 and 26

Join us and the Sickle Cell Disease Association of America, Inc. (SCDAA) for National Sickle Cell Advocacy Day 2013 Tuesday, June 25, 2013 at 6:00 PM – Wednesday, June 26, 2013 at 5:00 PM (EDT) in...

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Health Moment: Sickle Cell Update – 4 Years Old and Summer is Here

I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many...

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A New Companion for Children With Sickle Cell Disease

This post is sponsored by Aflac, Inc.. All opinions are my own. Visit Aflac’s page for childhood cancer  and sickle cell disease to learn more about My Special Aflac Duck® and Aflac’s commitment to...

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