Health Moment: Sickle Cell Update – 4 Years Old and Summer is Here
I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many...
View ArticleParents, Let Go of the Guilt and be Thankful
Prayerfully, I will take a few moments to share my story with you, and I pray for you as a parent and a spouse. If you are parenting a child with a genetic disorder or another type of illness let go of...
View ArticleSickle Cell and Accomplishing Big Dreams #30forSickleCell
One lesson I want my daughter to learn in life is that even though she has Sickle Cell Anemia, education is not optional. She is fully capable of learning and living with Sickle Cell. Everyday, I...
View Article5 Myths About Sickle Cell Disease Debunked #30forSickleCell
There are many myths associated with sickle cell disease, but today we will debunk a few and provide people with a better understanding of what sickle cell is and how it affects different types of...
View ArticleThe Right Attitude #30forSickleCell
Every year we are blessed to spend here on earth we should be thankful for the opportunities and experiences we have. As a parent of a child with Sickle Cell Disease it can be very easy to look at the...
View ArticleFighting Sickle Cell on House Call With Dr. Mac (Part 2) #30forSickleCell
I’m always reminded that God’s got this! He still has the world in His hands. We cannot take time off of life to just STOP. No, we must keep going and continue to fight for our families. We also must...
View Article2015 Sickle Cell Forum Recap #SCDFORUM15
Wow! There is so much I could write about, but in the interest of time, I have decided to share with you my top 5 most memorable moments while attending the 2015 Sickle Cell Forum at the National...
View Article5 Facts About Sickle Cell You Should Know – World Sickle Cell Day
As you know World Sickle Cell Day is very close to my heart. Everyday that I look at my daughter and she lives pain-free is a blessing. So far with a healthy diet and drinking plenty of fluids her life...
View ArticleSickle Cell Disease
One of our daughters was diagnosed with Sickle Cell Disease when she was a couple of weeks old. Specifically, the doctor told us she had (SS) Sickle Cell Anemia. So, what is Sickle Cell Anemia? It is...
View ArticleTune in @2 EST. Today for a Live Symposium on Sickle Cell Disease
“Pain in Sickle Cell Disease…Battling Stigma and Gaps in Knowledge” will be live online at http://www.sicklecell.howard.edu/ this symposium airs Today, May 10, 2011 at 2 p.m. EST. Fourth Roland B....
View ArticleMy Little Hero and Her First TCD Test
Image: redjar I sat at my computer while tears rolled down the apples of my check. Is it OK for me to cry? Does it mean that I trust God less? Sometimes I feel sad that my child has Sickle Cell Disease...
View ArticleParenting a Child with Sickle Cell Disease
“In the United States more than 80,000 people have Sickle Cell Disease” (Hope & Destiny, p.1). In fact, it is one of the most prevalent genetic disorders in this country, but also one of the least...
View ArticleSickle Cell and Pool Safety
Source: Worakit Sirijinda, freedigitalphotos.org This year my family will take a trip to Great Wolf lodge, a family friendly resort and water park. I am excited about the trip and the break, but also...
View ArticleNational Sickle Cell Advocacy Day 2013 – June 25 and 26
Join us and the Sickle Cell Disease Association of America, Inc. (SCDAA) for National Sickle Cell Advocacy Day 2013 Tuesday, June 25, 2013 at 6:00 PM – Wednesday, June 26, 2013 at 5:00 PM (EDT) in...
View ArticleHealth Moment: Sickle Cell Update – 4 Years Old and Summer is Here
I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many...
View ArticleA New Companion for Children With Sickle Cell Disease
This post is sponsored by Aflac, Inc.. All opinions are my own. Visit Aflac’s page for childhood cancer and sickle cell disease to learn more about My Special Aflac Duck® and Aflac’s commitment to...
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